Meet my new friend, Sandi Selvi. She has MS and went through nearly the same procedure I did in 2000. Her story is inspiring and is another example of the real benefits of this procedure. She explains in great detail on her website. www.sandiselvi.com Her picture takes you there, too.
We thank all those who donated money and their time to help us get through this procedure. The money helped us with our living expenses for the two months we were in Chicago. We especially thank everyone for their prayers.
On June 15, 2007, I went to Chicago to take part in a procedure called "Nonmyeloablative Autologous hematopoietic stem cell transplantation for Multiple Sclerosis" at Northwestern Memorial Hospital in Chicago, IL to put my RRMS (Relapsing-Remitting Multiple Sclerosis) into a long term remission. With testing and hospitalization, it took two months to complete.
My goal with these pages is to help people who have this disease , those who care for them, and maybe even some doctors and/or Insurance Company Executives by keeping them informed of this procedure. Unfortunately, this procedure is not for all those with MS. There are several criteria that must be met to qualify. Sadly, this procedure does not work well for those whose disease progression is advanced. But hopefully, I can help inform those with RRMS that may be interested and want to look into this procedure. If so, a referral from your neurologist is the first step.
I am not the first person to undergo this procedure (or one very similar). But there are very few MS sufferers who have. This procedure has been very successful in putting people with MS into complete remission. My new friend, Sandi Selvi (shown below) is at seven + years and still in remission.
I am building a community of people with MS in the hope that more of us can reach a sustained remission. If you have a website or blog link that you think can offer advise or support to those with MS, please go to my blog or email me at my email address listed on every page of this site. I will add the link to this site.
All of my Procedure and Recovery Videos are also on YouTube.
I will add more friends as I find them.
Welcome To all
The New MRI Results of July 8, 2009 Are In (Lesions Stable with No New Activity)
New MRI Images and Reports will be added when received.